All posts filed under: Big Medical Words

All about the medical stuff, less personal. This is the category for those of you who recently got diagnosed or have medical questions.

Heroes Come in All Shapes & Sizes

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Big Medical Words / Deep Thoughts About POTS / Uncategorized

My POTS has been rough lately.  I am sure the change of seasons is not helping a bunch, but isn’t fully to blame.  Probably me having POTS is mostly to blame. I was at Costco the other day.  I mostly had to get dog food and a few other little things.  If we’re being honest, I look forward to slipper season at Costco every year.  I love to splurge on new slippers each Fall. As […]

New POTS Research

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Big Medical Words / Uncategorized

Last week electrophysiologist.  This week neurologist.  Both relatively uneventful with the exception of some news from my neurologist. He starts out appointments pretty much the same way each time.  He enters the room saying, “do you have POTS?”  When I answer that yes I do, he usually follows it up with “why do you have POTS?”  That is usually when I throw out some kind of sarcastic or smart ass answer. He handed me a […]

A Little Ketchup- or Catch Up

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Big Medical Words / Deep Thoughts About POTS / Sparkles & Rust / Uncategorized

I’ve been feeling rough lately.  I’m not big on whining, but my POTS has just been extra angry lately.  I’ve had some passing out and some near passing out.  My stomach has been extra touchy.  Eating, sometimes even a small amount, has caused a big dizziness problem while digesting.  Ugh.  It’s just frustrating when I have things I would love to do, but my daily goals have been precious little.  Yesterday I accomplished a shower.  […]

My Guide to Las Vegas with POTS and Other Forms of Dysautonomia

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Big Medical Words / Hold My Gatorade and Watch This / Oxygen-y Stuff / Uncategorized

So you want the bright light city to set your soul, set your soul on fire, eh? Here is my little guide to surviving with POTS. Water Pack it, or plan to bring a small fortune to stay hydrated.  The other option is to learn to like tap water.  Bottles of water on average were anywhere between $3.50 to $6.  These are for 20 oz bottles, not even big bottles.  Some hotels had vending machines with bottled […]

Today’s Independent Medical Exam: What I Wish I Could Have Said

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Big Medical Words / Deep Thoughts About POTS / Uncategorized

Ooh boy, how long until self control goes out of style? Today I had my independent medical exam.  So I’m on disability through social security, but what I am currently trying to get approved for is the ability to access my retirement fund now because I have essentially retired due to disability.  So this is the money that I paid in during my time in law enforcement.  It’s really not much because I only had […]

Total Eclipse of Pain- Does the Eclipse Effect Health?

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Big Medical Words / Deep Thoughts About POTS / Uncategorized

Unless you live under a rock, I’m sure you knew that today was the total solar eclipse (or for us the 92% eclipse).  This made plenty of people completely lose their minds.  Some people drove hundreds of miles and paid thousands of dollars for a spot to sit and watch the 5 minute eclipse in the path of totality.  Some people paid insane amounts of money for eclipse glasses. A few notes about this: Every […]

Want to Pay Less for Your Prescriptions?

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Big Medical Words / Uncategorized

How much do you pay each month for your prescriptions?  If you’re like me, I’m guessing you don’t buy them and take them just for fun.  Most prescriptions are a necessity to keep yourself alive, healthy, conscious, etc. I happen to be double covered so my prescriptions are still a chunk of my income, but not anywhere near what many have to pay, or what I would have to pay if I didn’t have insurance. […]

Two-A-Day of Doctor’s Appointments & 8 Little Magic Words

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Big Medical Words / Deep Thoughts About POTS / Hold My Gatorade and Watch This / Uncategorized

A couple days ago I had two appointments.  Not my favorite, but at least I only had to get all ready and leave the house once. First up, falcon doctor (also known as nutraceutical and genetic doctor).  Sad news, he is currently falcon-less.  I asked where Mr. Fritz was and he said, “He’s gone.  He took off for the ladies.  Bros before hoes man.  He totally broke bro-code.”  That’s a direct quote, obviously.  He makes me […]

Pretend Good News

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Big Medical Words / Uncategorized

Don’t get your hopes up.  This isn’t actually good news; it’s just pretend good news. I got my first denial.  In a way I feel like I fit in a little bit more better with my other chronic illness friends now. Yes, I still have social security disability.  I was working to also access my retirement fund since they have a ‘disability retirement’ option.  Since I’m fully disabled according to the social security people, I […]

Two Phrases that a Medical Professional Shouldn’t Combine

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Big Medical Words / Uncategorized

So I hadn’t been to the gynecologist since my diagnosis of POTS.  The reason is that I hadn’t run out of birth control yet.  That’s how they get you to go.  You have your prescription and when it runs out they say that you have to go back to see them to get your prescription refilled.  I don’t know if I’ve mentioned it, but I have endometriosis (confirmed and diagnosed via laparoscopy surgery in 2010-ish […]