My Symptoms and My Treatments

This is for those people out there who are trying to actually compare symptoms, meds and find any fixes out there.

My symptoms:

  • Dizziness
  • Tachycardia
  • Lightheadedness
  • Pre-Syncope
  • Syncope
  • Nausea
  • Fatigue
  • Pain
  • Frequent Urination
  • Balance issues
  • Shortness of Breath
  • Muscle Weakness
  • Tremors- sometimes violent, see video here Tremors, Including Almost PG13 Video
  • Headaches
  • Temperature regulation problems
  • Digestive problems

symptoms

My Meds:

  • The current Beta Blocker of choice is Metoprolol Toprol 25 MG.  I started with Lobetalol, then Atenolol at varying doses, then Propranolol, now this.
  • I’m on Cymbalta 60 MG right now to help with nerve pain.
  • I’m on an oral birth control to help to eliminate menstrual periods due to endometriosis.
  • I’m on Dapsone (which I realize is the drug given to people who have Leprosy).  I don’t have Leprosy but I do have a fairly serious skin condition called recurrent Erythema Multiforme.  Dapsone does a good job to keep that under control.
  • I take Ativan on occasion as needed for violent or non-stop tremors.
  • I take Promethazine as needed for nausea.

I’m also attending physical therapy twice a week to work on cardio as I can, as well as recumbent exercises.

Feel free to share if you have a similar diagnosis and which meds have worked best to help control your symptoms!

 

5 Comments

  1. Faith Simmons says

    Hello. I am fairly new to all this POTS stuff. Mine started instantly back in August while I was at the grocery store and suddenly my heart rate went through the roof as if I had run a marathon, which if course scared me and I had someone call an ambulance. At first, I was diagnosed with low potassium. Then, it happened again, and again I headed to the ER. after a lot of testing, EKG’s and such, They diagnosed me with anxiety attacks. I was very frustrated by this because I knew it was more than than. I was having heart palpitations which felt like skipped beats, but was told they were actually PVCs or extra beats. I also had a total abdominal hysterectomy in September and the palpations and racing heart were so much worse right after the surgery. During this time, I lost 25 lbs due to having no appetite probably because most of the time after eating, I would have palpitations. I was also having anxiety at night and could not sleep because I would have what I described as adrenaline rushes all through my body. After finally seeing a chiropractor in December, he suspected POTS and sent me to a cardiologist who specialized in dysautonomia. He diagnosed me with POTS. He has me on Midodrine, which has helped a lot. I am going to start juicing again and hope this helps as well. I feel what gets me the most is feeling guilty for putting my kids and husband through so much. Especially days/evenings I feel tired or a foggy headed or a bit dizzy. Not sure if the dizziness is caused by the POTS or the Midodrine that I am on….Anyway, thank for your blog! Praying for healing for us all!

    Like

    • Thanks for reading! I always find it interesting which doctor finally suggests POTS. Good for that chiropractor.

      The guilt is huge. I get it.

      Hang in there and stay strong mentally. One day at a time.

      Like

  2. Tanya Marlow says

    Hi! It’s great to find your site. I have M.E. and POTS and am housebound, needing to be in bed 21-22hours a day. (Super fun.)

    I’m also a writer who blogs about the Bible, the suffering, and the messy edges of life, and author of Coming Back to God When You Feel Empty.

    I don’t have beta blockers – but I have things that work with the ‘funny channels’ in the body. I kid you not, that is the actual medical name. Alpha channels, beta channels and ‘funny channels’. I have ivabradine (which is the funny channel thing) and midrodine (which is commonly prescribed for POTS people). And slow-release sodium tablets (I.e. Salt) because the body holds onto water better when it has salt – think saline drip in hospitals. I don’t suffer from much syncope but my tachycardia and breathlessness is the big problem. I still have M.E. which limits me considerably, but the POTS symptoms are really helped by the medication – I’ve noticed a huge difference.

    Best wishes to all who stop by here! My blog is http://tanyamarlow.com

    Liked by 1 person

      • Rhonda Adamson says

        i put 1 tblspn of himalayan salt in 24 oz of water and drink 3 to 4 of these a day . When i do physical therapy they recommended gatorade so i do both. I also do klonopin at night to help with all of the “fight or flight” symptoms that kick in at night while i try to sleep. i just started midodrine so we will see how that goes . And of course a beta blocker- propanalol. I do feel stronger since i started physical therapy and my therapist was great! When i got chills doing any core strengthening she knew it was my fight or flight kicking in because my body is stuck there. Thank you for your website. I check it every day! It helps me get through mine!

        Liked by 2 people

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