All posts filed under: Oxygen-y Stuff

Ya. Anything and everything about my in-home oxygen concentrator and my portable tanks.

Boats, Trains, & Automobiles

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Bobby Pins & Bullets / Hold My Gatorade and Watch This / Oxygen-y Stuff / Uncategorized

Last week we had a day filled with transportation and I thought I would share about it. Around 11:30 we loaded up on my parent’s boat for some fun, which means that I started preparing and packing around 8:45.  I made a picnic lunch of tuna sandwiches, veggies and dip, crackers and two kinds of spread, and potato chips.  The night before Carter and I made a big pan of caramel chocolate chip cookie bars.  […]

My Guide to Las Vegas with POTS and Other Forms of Dysautonomia

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Big Medical Words / Hold My Gatorade and Watch This / Oxygen-y Stuff / Uncategorized

So you want the bright light city to set your soul, set your soul on fire, eh? Here is my little guide to surviving with POTS. Water Pack it, or plan to bring a small fortune to stay hydrated.  The other option is to learn to like tap water.  Bottles of water on average were anywhere between $3.50 to $6.  These are for 20 oz bottles, not even big bottles.  Some hotels had vending machines with bottled […]

Vacation Fun & Passing Out on an Airplane

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Big Medical Words / Oxygen-y Stuff

Last night we got home from a wonderful long weekend out of town.  Tom and I went to visit my brother and my sister-in-law in the Denver area. The flight down went really well.  Just a headache, some fatigue, and some overall body pain.  Nothing horrific at all.  I spent the next day recovering and resting as much as possible because that night was very important.  That night I got to make some childhood dreams […]

Hockey, Teddy Bears & O2

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Hockey, the Other Best Medicine / Oxygen-y Stuff

Last night was the annual Teddy Bear Toss hockey game.  Luckily Carter’s cub scout group was going so we were able to go with them and get nice close seats.  (Side note: for a true hockey fan like me, I prefer to be much higher so that I can see both ends of the ice well and watch plays develop, but close is fun sometimes too.) These games have fairly simple rules: as soon as […]

What a POTS Crash Day Looks Like

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Big Medical Words / Deep Thoughts About POTS / Oxygen-y Stuff / Uncategorized

Sometimes people ask me what causes a ‘bad day’ or what that even looks like.  Occasionally it’s hard to explain why I can’t go somewhere or do something.  I thought I’d go through a little explanation of how this all goes down. I slept pretty well last night.  Drank at least 6 glasses of water through the night.  We stayed up late-ish so I woke up around 11:30 or noon. I got up, went to […]

Come Fly with Me- Come Fly Away

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Big Medical Words / Oxygen-y Stuff / Uncategorized

Flying. For those of you who don’t know me, let me mention real quickly that I’ve flown a LOT in my little life. My dad is a pilot. We grew up being extremely exposed to flying.  Before gas prices got all crazy back in the day, we used to rent a 4 seater plane and fly to another city for the day. We’d eat lunch and fly back again. My dad would let either my […]

Home Fill Oxygen- User Friendly?

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Hold My Gatorade and Watch This / Oxygen-y Stuff / Uncategorized

Ok. I realize I am operating with a less than optimal body, but damn, setting up the in-home oxygen tank to refill cylinders is not exactly user friendly. Let me walk you through it. First and foremost, the youtube video to walk you through it is NINE FREAKING MINUTES long.  It starts out by explaining why your doctor prescribed you oxygen.  Ok, I already know that part.  So that’s annoying. About 3 minutes into the video […]

Every Breath I Take

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Oxygen-y Stuff / Smile Makers / Uncategorized

Oxygen.  Let’s take a few minutes to discuss oxygen. Why? Because oxygen is pretty important for sustaining life.  Oh, and also because I got a new medical device: in-home oxygen.  I have an oxygen concentrator, which is cool because then I don’t have to have oxygen delivered or go anywhere to pick it up.  For those unfamiliar (which included me a few weeks ago) a concentrator is a cool machine that you just plug in […]