All posts filed under: Deep Thoughts About POTS

Thoughts and reflections

The Day Wheat Bran Betrayed Me

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Deep Thoughts About POTS / Uncategorized

We have a deal.  Wheat Bran is supposed to be the one thing that I don’t throw up.  Now it’s the one thing that I usually don’t throw up, because it broke the pact.  Two days ago I woke up in excruciating pain.  I don’t like to discuss pain and talk about it a whole lot because I feel like everyone has pain in different ways and talking about it sometimes leads to the comparison […]

Fight or Flight or Faint

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Deep Thoughts About POTS / Uncategorized

Fight or flight is a function of the autonomic nervous system.  My autonomic nervous system is confused and faulty.  A few days ago I was outside working to clean the garage with Tom and Carter.  I did a few trips on the stairs taking things to the basement.  I came back out to the garage and rested a bit before moving over to the deck to move the chairs.  I picked up one and got […]

The Little Moments All Add Up

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Deep Thoughts About POTS / Uncategorized

Ah, today.  Let me walk you through my day and show how all of these seemingly tiny moments can add up to cause a problem. First up.  I had a doctor’s appointment at 2:30.  One of those ‘your appointment is at 2:30, but be here at 2:15 to check in because most people are late even though you have never been late’ kind of appointments. I showed up at 2:11.  My official appointment time was […]

Two-A-Day of Doctor’s Appointments & 8 Little Magic Words

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Big Medical Words / Deep Thoughts About POTS / Hold My Gatorade and Watch This / Uncategorized

A couple days ago I had two appointments.  Not my favorite, but at least I only had to get all ready and leave the house once. First up, falcon doctor (also known as nutraceutical and genetic doctor).  Sad news, he is currently falcon-less.  I asked where Mr. Fritz was and he said, “He’s gone.  He took off for the ladies.  Bros before hoes man.  He totally broke bro-code.”  That’s a direct quote, obviously.  He makes me […]

I’m Doing a Thing- Slowly

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Deep Thoughts About POTS / Hold My Gatorade and Watch This

A valuable lesson I’ve learned since this whole POTS diagnosis and life change is this: to see growth, we must look at a larger section of time.  Everything is trickier and harder and takes longer.  Even the POTS specialist I saw said I could gradually add minutes onto my recumbent biking over years.  He said the word ‘years’.  That should have struck me at the time as just how slow any change happens with my […]

A Visit From the Priority Fairy

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Bobby Pins & Bullets / Deep Thoughts About POTS / Uncategorized

What’s that, you ask?  A Priority Fairy is someone I just made up, but I am pretty sure it could be real.  Do you ever have a moment when something just immediately strikes you and you make a huge realization, or things are just put into perspective clearly? The Priority Fairy recently struck in my house.  Allow me to share. One thing that has remained the same since before my diagnosis is our bedtime routine.  […]

American Housewife Wisdom & a Mini-Coma

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Big Medical Words / Deep Thoughts About POTS / Smile Makers

I’ve been quiet again.  I know.  Life has been feeling crazy.  I’ll try to catch you all up in this here handy dandy little blog post.  It might not even be little.  I won’t make any promises. I was relaxing this week and watching American Housewife.  It’s a newer show with Katy Mixon; you might remember her as the sister from Mike & Molly.  She’s hilarious.  In this show she frequently ‘talks in her head’ […]

Checking In

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Deep Thoughts About POTS / Uncategorized

I’ve been a bit MIA from my blog.  I got my first “are you still alive” email the other day so I figured I should check in. The last few days have been rough.  I’m not ready to discuss it all yet.  I have my next live video with the Mighty in January and I’m working up the nerve to talk about it then.  Maybe. Either way, day by day, doing a little better now. […]

Progress? or Progress!

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Deep Thoughts About POTS / Uncategorized

Progress.  If there’s one thing out there that people really want to genuinely know about, it’s progress.  That’s the question I get asked the most often.  Are you getting better?  Are you making progress?  Some people in the chronic illness world take great offense to this question.  Me, I don’t.  People desperately like a resolution and they want to hear “yes I’m getting better” or “yes I’m over that sickness.” I get it. When someone […]

What a POTS Crash Day Looks Like

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Big Medical Words / Deep Thoughts About POTS / Oxygen-y Stuff / Uncategorized

Sometimes people ask me what causes a ‘bad day’ or what that even looks like.  Occasionally it’s hard to explain why I can’t go somewhere or do something.  I thought I’d go through a little explanation of how this all goes down. I slept pretty well last night.  Drank at least 6 glasses of water through the night.  We stayed up late-ish so I woke up around 11:30 or noon. I got up, went to […]